Hello! I’m Hannah.
I’m 23 years old and I have a rare skin condition called hydroa vacciaforme.
Hydroa vacciaforme is a photosensitive condition and is triggered by the UVA and UVA rays of the sun. It makes my skin blister and boil, leaving behind scars and thin areas of skin.
There is no cure for my condition and no treatments; it’s so rare that there are only 6 people in the UK that have it, myself being the worst one and also the patient that has had it the longest!
I’ve had this condition for 17 years and in that time, unfortunately, I have found nothing that helps my skin long term. However UV sun protection clothing is helpful to protect my head and my hands!
Thank you Hannah for helping raise awareness for skin conditions by sharing your story with us and our Solbari Community.
The Solbari Team
You probably spend more time driving your car than you spend relaxing at the beach, but for which activity do you wear the most sun protection? Beyond sunglasses, we don't always think to use sun protection in the car. This blog post will explain why you need sun protection during your commute and which products you can use for the safest drive.
“It wasn't until I retired and relocated to Queensland that I discovered that yearly skin checks were important. Queensland has the highest rate of skin cancer in Australia. I was shocked to be diagnosed with a squamous cell cancer on my forearm and shortly after, a Basal Cell on my throat.” — Anne, Solbari Customer